Monday, January 24, 2022

The heroism of Adalia Rose Williams: YouTuber with rare Benjamin Button disease dies at 15

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Adalia Rose Williams documented her life and explored how she lived with the chronic progeria that was causing her to age faster

Texas-based YouTuber Adalia Rose Williams, who was diagnosed with Hutchinson-Gilford Progeria Syndrome as a baby, has died at the age of 15. childhood genetic condition with features resembling premature aging. Williams’ tragic death was announced on her Facebook page. The child’s progeria is popularly known as Benjamin Button disease (nickname for the Brad Pitt film in which his character ages backwards).

“On January 12, 2022 at 7 p.m. Adalia Rose Williams was released from this world. She came in quietly and left quietly, but her life was far from it. She touched MILLIONS of people and made the biggest impression on everyone who knew her. She is no longer in pain and now dances to all the music she loves. I really wish that wasn’t our reality, but unfortunately it is. We want to say thank you to everyone who loved and supported her. Thank you to all of her doctors and nurses who have worked over the years to keep her healthy. The family now wishes to mourn this great loss privately,” the post reads. The disorder is thought to affect just one person in eight million around the world. In recent months we have also had news of the deaths of many social Media Influencers and Celebs Received “Here for the tea” YouTuber Samantha Rabinowitz died last November Also, something really bizarre happened after Norwegian YouTuber Tor Eckhoff died five days after he posted “I am not dead.”

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Williams, a YouTuber, has also posted on other social media platforms. She documented her life and shed light on how she lived with the chronic disease. Around 400 children are currently living with the disease worldwide, according to the Progeria Research Foundation.

Williams began uploading videos to YouTube in 2012. Over time, she gained 2.9 million subscribers. In addition to health updates, Williams also posted makeup tutorials, dances, and skits featuring other members of her family.

Social media mourned Williams’ death with tributes and condolences pouring in on Twitter. “My heart is indeed broken… Adalia Rose Williams you are so loved and I am so sorry you had to go so soon. “Today is a day where we not only celebrate the life of this young girl here, but also that of a child in Genesis who named her after an on-demand reload nac feature that we know changed trick shooting.” Today we celebrate Adalia Rose (Williams),” wrote another.

“RIP my beautiful angel! I love her so much and will never forget her, we need people like her in this world!” One user commented, while another wrote: “If you feel sorry for yourself, remember some people don’t have 1/100th of what you have. Be thankful and thank people. She is in a better place now.” “Rest in the arms of the Lord Adalia Rose,” one user wrote.

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